Sarah Gilbert, a very smart friend, recently shared her personal mantra: 'do what you can, when you can.' I REALLY needed to hear this. I REALLY needed to hear it right now. 2022 could best be summed up as 'the year I lived in a dark cave'. Living with chronic invisible illness is frustrating/isolating/depressing/enraging at … Continue reading Happy New Year
hyper- focus is an art i slip into words into screen until i am nothing. . . nothing but blinking cursor nothing but task decoded into nibbles into bytes i swim free i dread interruption disruption yanks me rudely violently back into body no longer able to block out to ignore this wrecked vessel excruciatingly … Continue reading Byte
October 26, 2020
I am living on caffeine and anxiety my diet nutrient- and comfort- poor occasional sips of hope curdle instantly against inflamed walls of my leaky gut hands pressed tightly to my abdomen I fight to contain the acid wash of my rage grief dread I am living disability check to disability check furtively shoulders hunched … Continue reading October 26, 2020
Call For Submissions But You Don’t LOOK Sick: Battles we fight with invisible illness – an Anthology
Indie Blu(e), the publisher of We Will Not Be Silenced, is now accepting submissions for an anthology of writers and artists who live with a chronic but invisible illness, or who care for someone else who does. The focus of this anthology is revealing the honest experience of living with invisible illness. We want it … Continue reading Call For Submissions But You Don’t LOOK Sick: Battles we fight with invisible illness – an Anthology
How do you spell that again?
As some of you may be aware, I have been struggling with some very frustrating and disruptive physical symptoms since January of this year. I am one of the lucky ones. I work in a world-class medical system and have had access to great care over the last nine months. But even those fabulous doctors … Continue reading How do you spell that again?